A Quick Update

I know that it’s been a long time since I’ve written, so I figured a quick update was in order.

Let’s see…first of all, I FINALLY got my car back. The first time it went to the shop with a busted radiator and warped head (gasket? The top part of the motor, anyway). I got the car back and the very next day I was stranded on the side of the road again. This time, it was a broken crank shaft. When I got the car back earlier this month I was scared to death that it was going to break down again. I was even scared to go above 60 mph. The other day, however, I had a lot of running around to do, and was all over this city. Now I have a renewed faith that my car really is fixed. I still have to take it to my sister’s house (she lives an hour away) and if I make it back and forth then I’ll know that it’s really fixed. The only thing it needs now is a new battery and I should be getting that tomorrow 🙂 .

Health-wise, things are a little better. My GP started me on a new medication that is supposed to help with my fatigue. So far, it has helped some with my pain (which is really good!) but no so much with the fatigue. The day I had so much running around to do, my “spoons” did last longer than usual, but the fatigue is still keeping me from being able to clean my house. I was really looking forward to that part, because my house needs a good cleaning. I am able to do the basics…wash dishes and wash clothes, but that is about it. I would love to have the energy to de-clutter and give the place a good once over i.e. sweep, mop, dust, ect. I’m just not there yet. The doctor said it might take a couple of weeks for the medicine to get into my bloodstream, and it’s been two weeks, so I think I’m going to call and see if there is any way we can increase the dose. Luckily this medicine is not an amphetamine. I was (am) afraid of that kind of medicine. The one I’m taking is supposed to work the same way as the amphetamines, but without being one. I don’t know the science behind that, but right now I’m just going with it. Like I said, it has helped some with the pain so I think a little tinkering with the dose and it just might work!

Also, the GP was concerned with the fact that I broke my foot from a simple fall, so he ordered a DEXA scan (bone density test). Luckily I don’t have osteoporosis, but I do have bone loss which is called osteopenia. It means that I am at a high risk for fractures and have to be careful not to fall. I am now taking calcium citrate in addition to the high levels of vitamin D, so hopefully I can keep from losing anymore bone mass.

I have had some trouble with brain fog lately. Not severe, but bothersome. My mood has been ok and my anxiety level is down, which is always good. Now that I have my car back I am looking forward to going back to the physical therapist because she was really starting to help. I am having difficulties with my new psychologist. If you remember, the one I was seeing moved out of town and I was refered to a new one. She and I just aren’t hitting it off very well. I have been to two sessions with her and I have left feeling worse than when I arrived. I just received an email back from my previous therapist with the names of two other ones that I can try. I have already checked with insurance to make sure that they are covered and will be making an appointment with one of them soon. I hope that she will be better than the current one.

So, that is about all of my new news. I will try to write more frequently. There are days that as long as I am able to wake up and breathe, that is good enough for me. Hopefully as the medicine begins to work its “magic” and my fatigue wears off a little, I will be more inclined to write a post or two. Maybe even do a little research and write an informative one like I did in the past. If not, well then I hope you don’t mind simply reading about my life with fibromyalgia and adhesions. After all, that is what this blog is all about…letting you see what life is like for me with my diseases.

Why Do You Take Pain Killers?

EDS and Chronic Pain News & Info

“Why Do You Take Pain Killers?” by Kitty Kavenaugh

I found this marvelous essay by Kitty Kavenaugh, which luckily encourages sharing it, so here it is:

Most of my friends know that I take oxycodone (Targin, the slow-release version, and then quick-release Oxynorm for break-through pain). They know that I need it in order to control my pain and they know that using it doesn’t make me a drug addict. They get that there’s a difference.

But every now and then, a relatively new friend will make some direct or indirect comment about how I shouldn’t be taking it. Their body language changes. They become tense across the shoulders and lean back a little, suddenly sceptical of my character. After several such encounters over the past few weeks, I feel compelled to explain why I take pain medication, what it means for me and to dispel some myths about opioids…

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