A Letter to Patients With Chronic Disease.
These are good things for all of us as chronic illness patients to remember. Please have a read…
Also, I would like to thank Zyp for always finding great articles.
I have written before about chronic pain and suicide (here). However, here is a post that way better explains this phenomenon. Please give it a read. It makes you rethink the way you see suicides by chronic sufferers of physical or emotional pain.
A Perspective On Suicide
Empathy is a hell of a drug. Isn’t it? It’s the ability to ‘trip’ on the emotions, feelings and thoughts of an-other. Unlike sympathy, it requires you to directly engage with someone else’s insides. You’ve got to walk in the other person’s shoes. You can’t just sit back on your pillow of pleasantness, laugh on the inside, and maybe, just maybe – only out of sympathy – extend your ‘supportive’, un-emotionally-fettered hand out for aid. Nope. Empathy demands your hands get dirty. It demands you to dive back into the dark places you’ve already been, to draw on the emotions and thoughts and experiences you’ve had, so that you can use those past-heartaches to relate to The Other.
When you empathise then, you’re not merely indulging in a purely intellectual exercise. When you’re empathising, you’re not simply observing your past experiences and identifying them as the correct response to The Other’s woes. It’s not like a school assessment where you merely have to recall data by dipping into your memory bank to retrieve the right answer. Humans don’t work like that…
To read more of this great blog, click on the following link: Let’s Talk About Em-pa-thy – Let’s Talk About You and Me.
What happens when patients know more than their doctors? Experiences of health interactions after diabetes patient education: a qualitative patient-led study – BMJ Open
Those of us with rare illnesses and mysterious “syndromes” have had to become experts in our own conditions because most doctors won’t be familiar with it. No doctor can specialize in every rare illness, so it’s not surprising that they may not be familiar with ours, but doctors should know enough to know when they don’t know.
When doctors believe they know better just by virtue of being a doctor, problems arise. This lengthy and detailed study finally validates the resistance and rejection we encounter when we know more than our doctors about our illness.
To read more, click on this link: What happens when patients know more than their doctors?.
This is exactly the problem I face when seeing a general practitioner!
This is amazing work being done by Neha Kinariwalla. I believe that it could apply to all illnesses, visible and invisible. Please take the time to read my friend’s post and watch the video. How do you think we could get involved?
Patients are profoundly affected by societies perception of their illnesses. So much so, that their own wellbeing can be at stake. Neha Kinariwalla is here to explain why this perception matters, and more importantly what we can do to change it. In this thought-provoking…
To read more and see the video, follow this link: How perception changes an illness: Neha Kinariwalla.
I was honored to be able to interview with blogger Sue Jones From the blog It Goes On. Here is that interview. Don’t forget to click the link at the bottom to read the actual questions and answers.
This evening I am speaking to a blogger who I really don’t know that well yet but also met through the Share Your WordPress Blogs Facebook page. Joy’s blog Joynpain2 is full of anecdotes of her life. Joy’s story on her About page takes you through her journey from anxiety to chronic pain from scar tissue, adhesions and fibromyalgia. Joy has had a lot to do with doctors and recently asked her GP to read her post Open Letter to General Practitionersbut he did not take kindly to it unfortunately and seen in her post Appointment: Fail. However not all of Joy’s posts are medically themed. She recently also posted Sitting ’round the Kitchen Table with an update of how life is going for her right now.
To read more, check out this link: Fellow Blogger – Joy from Joynpain2.
I came across this letter posted on another blog. It was originally written to help understand what people with Fibromyalgia live with. But it is pertinent to all the patients who are and family member of the chronically, “invisibly” ill. So I tweaked it a little. And would be forever grateful if you took a moment to read it (and share it)!
Open Letter To Normals,
These are the things that I would like you to understand about me before you judge me…
Please understand that being sick doesn’t mean I’m not still a human being. I may have to spend most of my day flat on my back in bed or on the couch in jammies, and I might not seem like great company, but I’m still me stuck inside this body. I still worry about school and work and my family and friends, and most of the time I’d still like to hear you talk about yours too.
To read more: Open Letter to “Normals:” Please Read.
I’m calling for some help from the wonderful Fibromites in my life (as well as some of the ones that I’ve yet to meet – Hello!). I have started a new page that I’ve been meaning to get out of my head for a while. It’s a page with all of the things that I’ve done to treat my fibromyalgia pain and how it went for me (or in this case – for us). Whether it was a…
Read more: Calling All Fibro-Bloggers!.
C4C had an amazing year. There were 149 different visitors just on the day, with 1,635 comments. Last year we had 335 comments, which means we had over 500% more chat this year!
Partly I think the new system made it easier to manage, and easier for visitors to navigate. Of course, the sprawling readership of Rara helped, as did the numerous people who posted badges. My thanks to everyone.
There was talk about doing C4C for other times of year. Perhaps I’d need to change the blog name for that? And not to Company for Valentines Day which unlikelyexplanations pointed out would be C4VD! Ick! We will see….
Read more of this post:
Thank you and !!COME BACK!!.