Shout-outs and Rantings

After another long, excruciating day of double doctors appointments that lasted close to three hours each, I am tuckered out. My energy level on a scale of 1-10 is about a 2 right now; I have just enough strength to go to the bathroom and to open the door for the dogs to go out. This is exactly how I felt when I got back from my trip. The difference is that at least in the car I had my big gel/foam cushion and at doctors offices you get some of the most uncomfortable chairs in the world (well, at least for adhesion sufferers they are. They might be ok for a “normal” person.). Now that I think about it, the most uncomfortable chairs were at the appointment that wasn’t medically related. They had straight back solid wood chairs, obviously with no cushioning because they were SOLID WOOD. Luckily including wait time the appointment took about 45 minutes. Anyway, I think the week has just built up on me. Monday- two different Drs. appointments. Tuesday- two appointments (at least one wasn’t medically related 🙂 ). Wednesday- I got to stay home and rest. Thursday (yesterday)- I had pre-op blood-work and papers to sign (you know the ones that say that you are completely aware of the risks and know that there is the chance of death either while on the operating table or after – lol (you know the saying that when you go to buy a house or a car you sign so many papers and you’ll be paying for so long you say “ok, I’m about to sign my life away” – that’s what I was thinking when I was getting on the elevator lol! -hey at least I can laugh about this stuff) and I also had to see my pain management doctor to tell “him” that the procedure never worked (I say “him” because I only saw the doctor on my first visit and i see him when I’m goofy from sedation going into the procedure room – normally I see a nurse practitioner and she runs everything by him). So, after one VERY long week I am now officially POOPED!

I have written before about the fact that I have adhesions. I even did an information page-post (still haven’t figured out the difference between those-feel free to comment and tell me) about it. Well, all you fibromyalgia sufferers, I now why my symptoms so closely relate to yours. I think I have fibromyalgia. All of the symptoms fit. Also, it turns out that “adhesions” isn’t a diagnosis. They are a lot of what is wrong with me, but according to the CDC, “adhesions” is not listed as a “disease or condition” while fibromyalgia is. So, I checked on the diagnosis that my pelvic pain specialist // ob/gyn has for me and it says “729.2 neuralgia, neuritis, and radiculitis unspecified” which is basically hurt/damaged nerves and “307.9 abdominal wall or pelvic floor myofacial syndrome.” The number basically means “unknown” but the description “myofacial syndrome” is muscle pain. So, put it all together and it equals to Fibromyalgia. Now I’m trying to decide if it’s worth it to get an appointment with a rheumatologist or not. Of my readers with fibromyalgia, how many of you were diagnosed by your primary care physician and how many of you had to go to a rheumatologist?

I also found another adhesion sufferer thanks to this blog site. That makes a grand total of 2. At least I know that there are others like me who understand the myriad of pain that adhesions cause. Reading their blogs just gives me confirmation that what I’m feeling is real. That is why I wanted to start this blog in the first place. To find others like me who understand since so much of the world doesn’t. I am so glad that I joined this site and have had the opportunity to meet such great people. So, it’s shout out time. My new adhesion sister’s blog is Life With Adhesions. My adhesion twin can be found at Spicyt’s Blog. My “WordPress friend” who has turned into a real friend, been there to listen to me vent, and given me some good advice is at Painful Hilarity. Last but not least is a guy who gives me a daily dose of laughter with his musings (which everyone knows is good for your health and good for the soul) can be found at Humans Are Wierd. Take a few minutes out of your day to check them out.

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7 thoughts on “Shout-outs and Rantings

  1. Thanks for the shout-out! 🙂 Now I really need to update my blog. Good luck with your upcoming surgery. Let us know how it all works out for you. I will be sending healing vibes on the 28th.

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  2. I had a rheumatologist be the first one to diagnose my fibromyalgia, but once you are diagnosed they don’t do much but give you a few pills and send you on your way. And, once diagnosed if you call a new rheumatologist, as soon as they hear fibromyalgia, they won’t even see you. My other doctors for my other illnesses tell me most of them don’t want to deal with fibro patients because they don’t know what to do. I’ve been trying to find a new one, as mine retired and he referred me to another one that refused to see me, even though I told them that my doctor, very well known, advised me to go to them. You might just want to have your primary care doctor diagnose and treat you. Mine treats me for mine. The treatment is basically medication for pain. Good luck on your journey.

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  3. Hey girl,
    How have you been doing? Haven’t talked to you in a over a week or something like that. You feeling any better? My fibro is in full force and I’ve been pretty much bed bound except for the never ending doctor visits. I’m in so much pain I can barely stand it and the Oxycodone isn’t helping too much. Just wanted to say hi and see if anything new was going on with you. I sure hope you are getting some sort of relief. Just checking in on you. Have a good evening. I’m in so much pain I can’t type much that’s why this is so short.

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  4. Fibro is one of my illnesses. I have the most amazing rheum. He is the first doctor – after 20 years of undiagnosable symptoms – to verbally acknowledge that my symptoms DO exist, they DO have a cause, I am NOT crazy (as some doctors have suggested when they didn’t know what to do with me) and he LISTENS to what I have to say or ask. I can deal with anything, as life has shown me, and to just be validated and have an ANSWER for what I have experienced for almost 30 years is such a relief. He is straight with me about my future and I appreciate that.

    The only other time I ever had a successful, positive and engaging doctor was ~6 years ago in another city. He took an hour for my first visit to ask questions, listen to my history and really ‘dig deep’ to see what the issue might be. Turns out my current rheumy knows of the other and speaks very highly.

    In my opinion, the symptoms are too complicated and knowledge of autoimmune disorders like fibromyalgia needs treatment by a doctor with specialized expertise – to be up on all the newest research and information.

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